Links

Links for Newborn and Infant

NEWBORN SCREENING :

  • The Health Resources and Services Administration (HRSA) is an agency under the Department of Health and Human Services Administration. HRSA provides national leadership, program resources and services needed to improve access to culturally competent, quality health care. This project is supported by a grant from the Genetic Services Branch of HRSA (MCH Project #: 1H46 MC 00189-03).
    http://www.hrsa.gov/
  • The National Newborn Screening and Genetics Resource Center (NNSGRC) provides information about newborn screening including national and state information.
    http://genes-r-us.uthscsa.edu/
  • The Save Babies Through Screening Foundation provides parent advocacy and general information about expanded newborn screening.
    http://www.savebabies.org/screening_info.html
  • The Genetic Alliance’s website includes information about parent support groups, genetics resources, a disease infosearch, and genetics feature articles. Information is also available in Spanish.
    http://www.geneticalliance.org/
  • The Family Voices website includes resources and program information for families of children with special health needs.
    http://www.familyvoices.org/
  • The March of Dimes is an organization that supports resources to have healthy babies.. The site includes a news section, a newsletter archive, and feature articles on topics such as pregnancy and premature birth.
    http://www.marchofdimes.com/
  • The Genetic and Rare Diseases Information Center employs experienced information specialists to answer in English or Spanish questions from the general public, including patients and their families, health care professionals and biomedical researchers.
    http://rarediseases.info.nih.gov/
  • Genetests provides reviews of select genetic disorders including those conditions often included in newborn screening. It also contains contact information for clinical and research genetics laboratories located worldwide.
    http://www.genetests.org
  • Medline Plus contains a glossary of genetic disorders, a news section, newsletters/print publications, clinical trials, and research, as well as separate sections for children, teenagers, and women.
    http://www.nlm.nih.gov/medlineplus/geneticdisorders.html

 

 

supported by 

 CLINIC FOR CHILDREN  Yudhasmara Foundation   

Office : Jl Taman bendungan Asahan 5 Bendungan Hilir Jakarta Pusat 10210  Phone : (021) 70081995 – 5703646

Email :  judarwanto@gmail.com  www.childrenclinic.wordpress.com/ 

WORKING TOGETHER SUPPORT TO THE HEALTH OF ALL CHILDREN BY CLINICAL, RESEARCH AND EDUCATIONS.  Advancing of the future pediatric and future parenting to optimalized physical, mental and social health and well being for fetal, newborn, infant, children, adolescents and young adult

 

 

Clinical -  Editor in Chief :

WIDODO JUDARWANTO, pediatrician

email : judarwanto@gmail.com 

curriculum vitae 

Information on this web site is provided for informational purposes only and is not a substitute for professional medical advice. You should not use the information on this web site for diagnosing or treating a medical or health condition. You should carefully read all product packaging. If you have or suspect you have a medical problem, promptly contact your professional healthcare provider

 

 

Copyright © 2010, Clinic For Children   Information Education Network. All rights reserved

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